15/05/2025
Interstitial cystitis is a painful , debilitating condition requiring ongoing ,continuous treatment and care.
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Upon poor or no treatment,my body weakens,becomes frail with ongoing spasms and contractions.Just the covers alone ,costs R8600.This is a preventative for comfort for unforseen leaks ,which cannot sometimes be controlled.Upon this treatment,I need ongoing support from Pretoria,catheters,saline waters,sterilizations to keep my catheters clean.Writing about this is not what I wanted to do,but my journal has to begin somewhere .Having these high medical expenses monthly,puts a weightened burden on myself and my family .No -one in life asks to be put with a medical disability.One that changes everything,but never setting me to start reaching out for my dreams.This first one will be for medical funding to sustain my high monthly expenses and go for a check up In Pretoria ,which is long overdue.
Tomorrow,I'll attach a back a buddy campaign to start getting the funding needed and breakdown of costs involved
Attached,is what a bladder with interstitial cystitis looks like.Chronically red,inflamed and scarred.In my case ,an option no other than bladder removal
Upon bladder removal,I had to have an Indiana pouch constructed,whereby I self -catheterise through the belly to urinate .
